“You Are Not Alone,” Comforting Message From a Nurse
by Valentina Mirto
| PTSD: My Story Project #013
Trigger warning
I have chosen to participate in the PTSD: My Story Project because I am constantly exposed to people suffering from trauma due to being critically unwell. Sometimes trauma can be a silent enemy. And the fact that not everyone speaks about it may make you feel alone in this battle. Whilst you may not be aware of this, you are not alone.
My story
Before you read my story, I would like to warn you that this may trigger feelings and emotions. Especially if you have been through critical illness, and have suffered or are currently suffering from PTSD post-critical illness. Now, if you feel safe, I would like to tell you a bit about me.
I am the first person people see when they wake up from a pharmacological coma. I am also the first person they would talk to if they had been critically unwell and were now working on their recovery journey.
This happens because I am not only a nurse in Intensive Care Unit but also a nurse who supports people recovering from critical illness. In order to explain to you what I do, I need to explain to you the correlation between PTSD and critical illness.
Read also ‘The Impact of Trauma – Nothing Can Prepare You by Dawne McKay‘
Critical Illness and PTSD
Critical illness often comes unexpectedly. And it can be a very traumatic experience due to the rapid sequence of events or the aggressive medical treatment that needs to be used in order to treat the cause.
You may be wondering what the link between PTSD and critical illness is. If so, let me take you on a short ride through Intensive Care that may help you understand.
People who suffer critical illness often get admitted to a critical care unit. Most of them will receive sedatives in order to induce a pharmacological coma. This practice is done for various conditions, such as respiratory failure, cardiac arrests, stroke and so on.
Being in a pharmacological coma (or medically induced coma) means that some of the normal functions of the human body get to rest while organs affected by the critical illness recuperate. Therefore, people who receive sedatives are not conscious, their eyes are closed, and they are often immobile. Hence, they cannot see what happens around them or move unless the sedation has been lowered or stopped. However, the fact that they cannot see their surroundings does not mean they cannot hear what goes on around them.
Words are powerful
As of today, there is evidence that people can still hear noise and voices while in a coma. Some of them may remember an entire conversation people around them had. That’s why it is important that we give them the feeling that they are not alone.
First I did not believe this could be possible when I joined the team. But then I looked after a lady in Intensive Care during Christmas. And when it was safe to stop her sedation and wake her up, she really surprised me. Her first question after she regained consciousness was, “Why did you stop singing?”
I could not hide my smile, thinking I had been singing Christmas Carols as part of a music therapy technique widely used in the unit.
Read also ‘Change Your Story, Change Your Life! by Jenna Hughes‘
Why does this happen?
Being able to hear while being sedated can have a positive side, such as hearing familiar voices and reassurances from the staff. But it can also have a negative effect. Who would be happy to hear voices and be unable to connect to them or answer back? This inability to find a connection with the person who is talking may increase frustration. And it may contribute to the development of PTSD whilst they are recovering.
Books tell us that PTSD usually happens following stressful, distressing and frightening events. You may now think, what is so stressful whilst sedated in Intensive Care and most of the time, you can’t remember what happened when you wake up?
Imagine for a second, that you are not feeling well and call an ambulance or pass out. And that this is the last memory you have before being woken up by a voice asking you to open your eyes. When you wake up, you see an unfamiliar face, a tube coming from your mouth and one or two from your nose, attachments everywhere. Then you hear the beeps coming from the machines that have helped you get through the illness. You suddenly realise that what you thought was your dream is actually real, and the noise seems incredibly loud.
Would you feel distressed and frightened? Personally, I would. Mainly because, just like all human beings, I am used to having control over my body, my actions, my gestures. Being in a coma, the power of control gets taken away. And people may experience a loss of identity and loneliness.
People often feel frightened and alone
“Who am I? Where am I? Who are those people around me? And why do they keep saying that they are nurses and doctors, surely I am not in hospital. But why am I on a boat, and why have my relatives left me here?” *
That’s what I usually hear after people wake up from a coma.
To add further, sedative drugs, despite being very good in terms of reducing awareness of painful and uncomfortable procedures, may have some side effects, just like other medicines. Critical illness and administration of sedatives may contribute to the onset of nightmares and hallucinations. These can be very vivid, and people often struggle to discern them from reality.
I have often heard people seeing fire in the surroundings, thinking of being on a floating boat, feeling frightened by medical staff as those resemble mythological figures rather than human beings. For some of those, there is an explanation. For example, the feeling of being on a floating boat could be due to the hospital mattress cells that inflate and deflate alternatively to prevent skin damage. However, they may as well be because of how the brain has processed information during critical illness.
Nightmares, hallucinations, loss of identity, disorientation, sleep deprivation may be contributing factors to the development of delirium post-critical illness. If you now consider all the factors, you may understand where PTSD generates from after being critically unwell.
I hope my description has not bored you much. But it was necessary to make you fully understand what I do and how I support people with PTSD.
Read also ‘How a Weightlifting Accident Led to Delayed-Onset PTSD by George McMillan‘
Active listening is the main secret
This world is continuously rushing, and people do not have time to talk between them. Some may ask how you feel today, but they may not pay much attention to your answer. For those affected by PTSD, often talking and feeling that they are listened to are essential.
I am not a therapist. But when I come across people who are developing PTSD following critical illness, I absolutely love creating a safe space where they can express their feelings and their emotions. Empathy and putting ourselves in their shoes are critical. And so, I respect their opinion and do not judge them. I keep their information confidential and escalate my concerns when needed. I do my best to give them the feeling that they are not alone.
In many situations, when I realise that a therapy delivered by a specialist is needed, I can refer people to talking therapies and cognitive behavioural therapy. I can also help create a link with a support group. But there is one thing that I am really proud of in regard to my team and all the teams that deliver the same service. We provide good quality time to people and do not look at the clock.
You are not alone
PTSD may make people feel sad, angry, overwhelmed, lonely. Most of the time people tend to isolate themselves because they do not feel listened to or understood. So, let me tell you this, “If you are battling PTSD, I want you to know that YOU ARE NOT ALONE.“
There is a lot of support out there, and those who have gone or are going through the same feeling. All you need to do is shout for help. Do not feel ashamed or afraid of holding the hand of others. No one should feel alone.
It may surprise you to read this at this place, but I suffered from PTSD when I was younger. This was due to my dad being physically and emotionally violent towards my mother. But this is another story. And I am now many chapters ahead of it, so revisiting it won’t benefit either of us. I have healed, and I want to offer you to hold my hands so you can heal too. You don’t need to feel alone. And as someone said, “Healing does not mean that the damage never existed, it means that the damage no longer controls our lives”.
*During the first visit after discharge from Critical Care, people often describe these feelings as the first impact of reality as soon as they wake up.
Valentina Mirto
Valentine, or Val as she is known as well, is a critical care nurse from Italy who moved to England to follow her dreams. She currently works in the Intensive Care Unit, and despite the challenges and some hard times, she loves her job. Travelling is her passion, but she prefers nature to cities. She believes in positive psychology and in the energy of the universe.
Read more real-life stories from trauma survivors here: ‘PTSD: My Story Project‘.
Do you have experience with PTSD, or do you take care of / live with someone who has? Would you like to share your story in a guest blog post?
Aim
I’m not an expert or a health professional, so the aim of this project isn’t to offer professional advice. Neither is it to pity those who experience PTSD. That’s not what I want. My aim is to raise awareness of PTSD. By sharing your story, you can inspire and empower others. You can highlight the methods that helped you. This way, you can encourage others to reach out for help.
And it may help you as well. Perhaps it’s something you feel like you’re not able to talk about within your closest circle and would like to connect with others in a similar situation. It’s nothing more than bearing an untold story inside you. The fact is that our society still lacks an understanding of mental health. Therefore, I’ve decided to share my story and invite others to join me in this project and write a blog post about their experience. By working together, we can help destigmatise mental health problems and promote well-being.
To be featured
If you would like to join in and share your story on my blog but don’t have the experience of writing a blog post, this isn’t a problem. You can still contact me, and I’d be happy to assist you with the writing. And you can use a pseudonym if you wish to stay anonymous. You can share as much of your story as you want in a way you feel comfortable with.
The only thing I ask is that you mention ‘PTSD: My story project’ in your post and briefly state why you have chosen to take part in it. You will be allowed to approve the post before publishing it, should it be edited.
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Great post! Thank you for sharing your story!
Dear Kirsten, thank you for reading
I have not experienced PTSD but had a neighbor that did. Back then we didn’t know much about it or how to react. Thanks for sharing and helping me to understand.
Dear Ann, I’m so happy to know that my post helped you understand your neighbour’s experience! Thank you for reading.
This is a difficult thing to share, I am thankful that you took the time to share your journey!
Hi A.H. thank you for taking time to read my post!
Great post! Thanks for sharing!
So many people have PTSD now and most do t truly understand it. Thank you for telling your story and shedding some light on the subject.
Dear Susan, thank you for reading my post
Great post and so important. As a healthcare worker, I really empathize with your experience. It’s also so important to keep in mind that our patients might be able to hear us, even if they’re sedated/unconscious.
Hi Genevieve, thank you for reading my post. I agree with you, it is so important to consider that sedated/unconscious patients might hear us and sometimes, even if we don’t mean to hurt, we can create damage. Words can be very powerful, either way.
Really great post! I’m so sorry you had to go through that, and thank you for sharing your story
Hi Riyah, thank you for reading.
I have medical PTSD, it is a difficult thing to deal with.
It really is and not everyone out there can fully understand what you’re going through. I hope you’re getting help and that your journey gets easier…it takes a lot of effort and courage. I’m sending you a hug.
Nice post. I was checking continuously this blog and I’m impressed! Very helpful information specially the last part ???? I care for such info a lot. I was seeking this certain information for a long time. Thank you and best of luck.
Thank you Hannah
With every little thing which seems to be building within this subject matter, many of your points of view are actually relatively exciting. Even so, I am sorry, but I do not give credence to your whole suggestion, all be it radical none the less. It appears to everybody that your opinions are actually not totally rationalized and in reality you are your self not even completely confident of your argument. In any case I did enjoy looking at it.
Wow! That is a strong comment and it sounds quite aggressive to me. “It appears to everybody”: how do you know everyone’s opinion? And how can you say that I am not confident of this subject? I accept critiques but your comment is full of assumptions, based on nothing. Anyway, I thank you for taking the time to read and I hope you have a nice day.
I think that person likes to spam a lot… Valentina, I really appreciate you sharing your story and would not read too much into a spam comment. Thanks again!
• The relationship between severe illness and PTSD is clarified by Valentina’s distinctive viewpoint as a nurse in the intensive care unit.
• The development of PTSD may be impacted by hearing voices while in a pharmaceutical coma since they can be both comforting and upsetting.
• Feelings of anxiety, confusion, and loneliness are exacerbated by sedatives and the loss of control that comes with a severe disease.
• Valentina stresses the value of providing supportive care and actively listening to persons who have PTSD.
• Her own story of recovering from PTSD serves as more proof that no one should feel isolated on the road to recovery.
Thank you so much!
what a nice post with a beautiful message. thanks for sharing.